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ME/CFS – the Severely and Very Severely Affected
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Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient; structured interviews with severely affected ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of moderately ill, severely ill, and very severely ill; case reports of ME/CFS in children. 2. A healthcare provider’s view of managing ME/CFS patients. 3. Characterization of the Severely and Very Severely Affected: (1) the most troubling symptoms; (2) disease severity diminishes capacity for exercise, (3) operationalized definitions of the severely ill and very severely ill; (4) the usefulness of a modified Korean Chalder Fatigue Scale Questionnaire; (5) cardiac dimensions and function in patients; (6) an easier tilt test; and (7) review of sleep studies. 4. Progress in Diagnosis and Treatment: (1) objective measures for grading ME/CFS; (2) a sitting tilt test for orthostatic intolerance; (3) the benefits of IVIgG; (4) risks and protective factors in suicidality; (5) malnutrition and overcoming it; (7) partnerships between patients, caregivers, and providers, and the use of technology; (8) a holistic model of care, “Compassion in Practice; and (9) the effects of suffering, utilizing a four-phase model. 5. Impact of the Disease: (1) a historical perspective; (2) the impact of ME/CFS on psychosocial dynamics; (3) the educational needs of school-aged; and (4) the economic impact of ME/CFS
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Keywords
- Adolescence
- Adulthood
- apnea
- Apnea-hypopnea index
- Bedbound
- cardiac function
- cardiopulmonary exercise testing
- Caregivers
- Case study
- cerebral blood flow
- chronic fatigue syndrome
- clinical presentation
- Compassion In Practice
- Diagnosis
- economic impact
- Education
- enteral nutrition
- EUROMENE
- Europe-Wide
- Grief
- Herxheimer Reaction
- homebound
- Humanities
- Illness progression
- Immunoglobulin Therapy
- Infection
- Isolation
- IVIgG
- Jarisch&ndash
- laboratory tests
- Lived Experience
- loss
- Malnutrition
- ME/CFS
- Mental health
- Moderately Ill
- Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
- Orthostatic Stress
- parenteral nutrition
- Patient Assessment
- patient management
- Prevention
- Psychological Causation
- psychosocial
- Severely Ill
- Sleep
- Social interaction
- Social isolation
- Social issues & processes
- Society & culture: general
- Society & Social Sciences
- stigma
- student learning
- suicidality
- symptoms
- Telemedicine
- thema EDItEUR::J Society and Social Sciences::JB Society and culture: general::JBF Social and ethical issues
- thema EDItEUR::N History and Archaeology::NH History
- Trauma
- Treatment
- tube feeding
- Very Severely III
Links
DOI: 10.3390/books978-3-0365-9361-6Editions