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ME/CFS – the Severely and Very Severely Affected

ME/CFS – the Severely and Very Severely Affected

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Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient; structured interviews with severely affected ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of moderately ill, severely ill, and very severely ill; case reports of ME/CFS in children. 2. A healthcare provider’s view of managing ME/CFS patients. 3. Characterization of the Severely and Very Severely Affected: (1) the most troubling symptoms; (2) disease severity diminishes capacity for exercise, (3) operationalized definitions of the severely ill and very severely ill; (4) the usefulness of a modified Korean Chalder Fatigue Scale Questionnaire; (5) cardiac dimensions and function in patients; (6) an easier tilt test; and (7) review of sleep studies. 4. Progress in Diagnosis and Treatment: (1) objective measures for grading ME/CFS; (2) a sitting tilt test for orthostatic intolerance; (3) the benefits of IVIgG; (4) risks and protective factors in suicidality; (5) malnutrition and overcoming it; (7) partnerships between patients, caregivers, and providers, and the use of technology; (8) a holistic model of care, “Compassion in Practice; and (9) the effects of suffering, utilizing a four-phase model. 5. Impact of the Disease: (1) a historical perspective; (2) the impact of ME/CFS on psychosocial dynamics; (3) the educational needs of school-aged; and (4) the economic impact of ME/CFS

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Keywords

  • Adolescence
  • Adulthood
  • apnea
  • Apnea-hypopnea index
  • Bedbound
  • cardiac function
  • cardiopulmonary exercise testing
  • Caregivers
  • Case study
  • cerebral blood flow
  • chronic fatigue syndrome
  • clinical presentation
  • Compassion In Practice
  • Diagnosis
  • economic impact
  • Education
  • enteral nutrition
  • EUROMENE
  • Europe-Wide
  • Grief
  • Herxheimer Reaction
  • homebound
  • Humanities
  • Illness progression
  • Immunoglobulin Therapy
  • Infection
  • Isolation
  • IVIgG
  • Jarisch&ndash
  • laboratory tests
  • Lived Experience
  • loss
  • Malnutrition
  • ME/CFS
  • Mental health
  • Moderately Ill
  • Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
  • Orthostatic Stress
  • parenteral nutrition
  • Patient Assessment
  • patient management
  • Prevention
  • Psychological Causation
  • psychosocial
  • Severely Ill
  • Sleep
  • Social interaction
  • Social isolation
  • Social issues & processes
  • Society & culture: general
  • Society & Social Sciences
  • stigma
  • student learning
  • suicidality
  • symptoms
  • Telemedicine
  • thema EDItEUR::J Society and Social Sciences::JB Society and culture: general::JBF Social and ethical issues
  • thema EDItEUR::N History and Archaeology::NH History
  • Trauma
  • Treatment
  • tube feeding
  • Very Severely III

Links

DOI: 10.3390/books978-3-0365-9361-6

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